Thought I would check in with you all after my last Dr. appt. It went ok---I am terribly depressed that I have to spend so much time "indisposed" as my daughter calls it. I mean isolated and medicated, you know what I mean. Anyway I let the tears flow, and gee, he gave me Prozac to add to the growing collection of little brown bottles on my dresser. Its like I can go eeny meeny miney moe and pick out the medication of the day. I don't have to tell you what they are---they've probably been in your cabinet too. I did get my weekly refill of Stadol just in case everything else fails I won't have to go to ER. One good thing---he did say if any er doc gives me a hard time about giving demerol in my hypo, that they could call him for the ok. So I say welcome to the new people on line. I, like many, drop by daily and share our misery (and our joys!) It helps. A lot. Mary Jo
Mary Jo <mdaniels@ncn.net>
IA USA - Tue Jun 16 16:47:09 1998
Hello, my name is Larry, I am a 32 year old professional with a wonderful wife and a beautiful 21 month old daughter.
I have been suffering from extreme headaches and migraines for about 4 years now. I wake up with pain in my right eye every morning (on a few rare occasions I am pain free when I wake up). If I keep my right eye closed the pain does not get worse for a little while. As soon as I start to move around the pain gets worse and travels to my right ear.
Then, if I am not medicating (usually a very hi dosage of over the counter pain killers or some kind of prescription drug) the pain will spread to the back right hand side of my skull. I will get a very tender and painful spot there. When I touch the spot it feels like a bad bruise. If I rub my head vigorously the pain will subside a little but the second I stop it is back and usually grows. These headaches started after a brief episode about 4 years ago. I had passed out during dinner, for apparently no reason. I was rushed to the hospital in an ambulance. I was given an IV of Potassium Chloride, I think. Anyway I guess my heart was racing at dangerous levels and my eyes were very red and bugging out a little bit. The blood work showed I still had a low potassium level. I was given a CAT scan and a Potassium supliment (Tastes like liquid sandpaper).
They said the CAT scan did not show anything wrong but that it was still possible to have had a minor stroke. I am 1/4 Apache and I have heard that Potassium deficiencies are most common in Native Americans. I recently had another CAT scan on my sinuses to see if that could be the problem. My doctor said there was no major sinus infection.
When my headaches really come on my right eye cannot focus and I am very sensative to light, in fact the sun light can bring on a very bad headache. I also see spots and hear voices or sounds some times when the headaches are bad (No the voices are not telling me to do things, but it is very distracting, I thought I was just talking to myself... wierd). Sometimes I find it impossible to concentrate, I will walk around wondering what the hell I was going to do or why did I come in here, stuff like that. My memory is pretty bad as well. I will eat dinner and 1 or 2 hours later I will ask my wife, "Whats for dinner honey ?" She will ask if I am still hungry, and I will think about it for a moment and say "no, what did we eat ?" The regular daily pain has become a way of life, but the severe headaches can really put me down. Any suggestions ?
Larry Lee <larryl@diamondmm.com>
San Jose, Ca USA - Tue Jun 16 16:35:50 1998
First, I would like to thank the originator of this Web Page. I no longer feel so alone. I am 29 and a teacher who has been out of work for four months due to a migraine that has not broken. I've suffered from them for as long as I can remember; however, I wasn't diagnosed until I was in college.
Fiorcet used to work for me years ago, but now it seems nothing works. I've tried the gamut of remedies from beta-blockers to painkillers to Immitrex and to various anti-depressent--all to no avail (or they caused serious side effects. I has temporary and slight relief from the steroid prednisone, but it's done more damage than good to me physically. I've tried biofeedback (but it always worked the ooposite on me), modifying my diet, psychotherapy, chiropractic care and physical therapy. Again, nothing has worked. I was hospitalized for the DHE protocol too, but left because it didn't work and it made me feel sicker than the stupid migraines.
My MRI's and EEG's are all normal, but why do I feel so abnormal?
Unfortunately, many of my doctors will not prescribe medication to kill the pain, or if they do, they'll give me a days worth of fiorcet and say make it last. Does anyone have any suggestions? I feel as if my life is on hold.
I hope to respond and read more when my head feels a bit better. I've also started some research on migraines being caused by poor mitochondrial functioning. I will post the results when I get some! Good luck fellow sufferers. You are in my thoughts and prayers. ~~Tina
Tina <Elessaria@aol.com>
NJ USA - Tue Jun 16 15:34:39 1998
Thanks to everyone out there who responded to my entry a few days ago. I would appreciate hearing from anyone who is on or has been on Sansert. It worked for me the first 6 months and then when I went off and back on I had some severe reactions. I'd love to hear from anyone. Thanks :-}
Becky <rhgrig@facstaff.wm.edu>
VA USA - Tue Jun 16 14:29:00 1998
I Was just released from the hospital where I went when I lost my speach and my eyesight was very very blurred and light sensitive and my neck ached. After 3 days of testing the doctors tell me that I have been having classic migranes.
I stated to them that I have no pain, migraines have pain. AH! No, they don't. I hit my head on a cement floor approx. 2 yrs. ago and have recovered reasonably well, but I kept telling the nerologist that I would have episodes, like a stall, momentarily, and my vision was really bothering me.
I am sure that you all can relate, when I say that I was just blown off and told to stay at work, it was good therapy, staying home would not help. Healing of a severe closed head trauma takes alot of time about 2-3 yrs.
I want to extend to all of you who have the pain with the migraines, I know what I have gone through and I have no pain.
If you have heard of this and have any information at all please e-mail me. I really need your support. I don't know if where I work will give me a hard time over
this one or not.
Thanks for listening..
PSM00011@peganet.com
P McFall <PSM00011@PEGANET.COM>
FORT MYERS, FL USA - Tue Jun 16 6:50:20 1998
Angel, thanks for your e-mail, I could not reply because I don't have your full address. Please e-mail me again with it. I just wanted to say that I have 2 teenage daughters,one will be a senior next year and the other will be a junior in high school. My son is 9 and will be going into 4th grade in the fall. It is so hard to see how much they miss their mom when you can't be there for them. As I said before I am an MSW and have worked with kids who's parents were emotionally unavailble to them for what ever reason. Even though we can't help it, would help it if we could, the bottom line remains the same. I would never tell anyone not to have a family because of this, I have seen people make those decesions and regretted it. I just think that it makes our suffering all the more painful. I just pray I can find something before my daughters have gone away to school and things will never be the same.
I don't think I mentioned it before, but I do use feverfew, and a few non specific vitamins, like C, B complex, and E. Beware, because herbs are not regulated, if you find one that works, make sure you stick to the same brand. I found out the hard way that, it's not good to change brands. I also can't say for sure what they have done for me. I have tried acupunture, trigger point injections, chiropractics etc. Nothing has worked for me, ...yet. But we keep hoping and looking. I think we are a much better resource for each other than anything else. Good luck, you are in my daily prayers. Maureen
Maureen Lyons Tashjian <MLTashjian@Juno.com>
Langhorne, PA USA - Mon Jun 15 18:58:44 1998
Angel, thanks for your e-mail, I could not reply because I don't have your full address. Please e-mail me again with it. I just wanted to say that I have 2 teenage daughters,one will be a senior next year and the other will be a junior in high school. My son is 9 and will be going into 4th grade in the fall. It is so hard to see how much they miss their mom when you can't be there for them. As I said before I am an MSW and have worked with kids who's parents were emotionally unavailble to them for what ever reason. Even though we can't help, would help it if we could, the bottom line remains the same. I would never tell anyone not to have a family because of this, I have seen people make those decesions and regretted it. I just think that it makes our suffering all the more painful. I just pray I can find something before my daughters have gone away to school and things will never be the same.
I don't think I mentioned it before, but I do use feverfew, and a few non specific vitamins, like C, B complex, and E. Beware, because herbs are not regulated, if you find one that works, make sure you stick to the same brand. I found out the hard way that, it's not good to change brands. I also can't say for sure what they have done for me. I have tried acupunture, trigger point injections, chiropractics etc. Nothing has worked for me, ...yet. But we keep hoping and looking. I think we are a much better resource for each other than anything else. Good luck, you are in my daily prayers. Maureen
Maureen Lyons Tashjian <MLTashjian>
Langhorne, PA USA - Mon Jun 15 18:55:36 1998
