Journal of Migraine Sufferers

Does anybody know if there is an internet chat room for migraine sufferers? Please let me know.

---Jennifer <premoire@concentric.net>
San Francisco, CA USA -

I've been having migraine's since I was 25 (now 38). Prior to that I just had "bad headaches" (no nausea). I currently use both Imetrix injections and pills. My insurance company will not however pay for the injections. I have migraines almost weekly, sometimes migraine onset headaches daily. Due to the financial burden of the injections I try to make the pills work by taking 50 mgs. with Ibuprofen. Are there any risks to combining these two? Also, I have been ayo-yo dieter most of my life. At present my weight is up, and possibly my blood pressure. Is there a link to migraines due to mildly high blood-pressure? I was taking a beta-blocker, should I start again? These daily onsets of migraine symptoms really needs to stop! Thanks- Lorraine

---Lorraine <lraine@postoffice.ptd.net>
USA -

I have had classic migraine headaches (with aura) since approximately 1987 which occured at 1-4 times per year until last year. Exactly one year ago I changed my migraine pattern to Basilar Artery Migraines. With these I experience parasthesia (loss of feeling) to the left side of my body, visual field losses, severe vertigo, nausea, vomiting, decreased muscular coordination, intense headache pain not relieved with most narcotics and rare seizures. The headaches started as a daily event and are decreased in intensity and frequency now by using Depakote (an anticonvulsant)... I failed Beta blockers, calcium channel blockers, and tricyclic antidepressants as prophylaxis. Imitrex caused coronary vasospasms and placed me in an ICU overnight. I am going to be placed on a 24 hour EEG/EKG/video monitoring for a 2 week period soon to help document these events. If anyone else has this experience I would be interested .

---Joe <Jdeweese@prodigy.net>
OK USA -

rhonda, I am so thankful to have found you. I am on disability due to migranes. They are destroyinging my life. I am 52 and a nurse and have learned more from your web site than anything I have learned from my medical knowledge and the numorous Doctors I have been to. Plus it is so nice to know that I am not crazy because it is still the same old story---the first thing the Doctor does is tell you "you have an anxiety problem"; and wants to send you to the first available shrink he can think of.----Well I've been there done that and I am sick of discussing my childhood etc. Its about time the medical profession had better wake up and smell the Roses and so on and so on. If anyone wants to contact me on questions etc. feel free cause GOd knows I know the drill!!
Janet <stella@verdenet.com>
cottonwood, Az. USA -

I have a friend who has migrains, and I am looking around to see if I can find ways to help her.

---JD
CT USA -

OK, yesterday was a nightmare. It was supposed to be a happy occasion. My boyfriend and I were celebrating Valentine's Day since we had to work the other day. Everything was going well. We went out to dinner, I had a beer. OOOPS!!!! Next, we went to see Titanic. That movie stressed me out so much, I left with a HUGE headache. I tried to drive home, what a joke. I always try to ignore the fact that I am in pain, what a mistake. When we got home, needless to say I didn't take my meds with me, I quickly downed about 800 mgs. of ibuprofen. I laid down and shoved my head into the pillows. Afew minutes later I threw up all over the place. I took some more medication, and promtly threw that up. Meanwhile, my head is pounding so hard it was driving me mad. I threw up everything for about three hours. Usually, my headache will somewhat go away after I get sick. It hung on and I was so mad. It's hard for me to fall asleep if I have a headache. I can't get comfortable. I finally fell asleep knowing that I would feel 200% better in the morning. I haven't had one like that in a while, and it scared me badly. I'm still sort of afraid that it will come back. I thought about this page many times lastnight thinking that there are others out there that are much worse off than me. I couldn't imagine anything worse, and I truly empathize with all of you.

---Karla Lanch <karlaj13@hotmail.com>
Santa Clara, CA USA -

I am 45 years old, and have had migranes for about 30 years. My father who is now 81 suffers from them. I have been to the Diamond Headache Clinic in Chicago, Ill, and had every treatment I can try from Garlic to Imitrex. Here in Nassau Imitrex is called IMIGRAM and has been avaliable for about ten years. It really changed my life, so I could have one. Sometimes it still does not work. Imigram is very hard on my stomach. I have had an ulcer twice due to, I think, taking so many pills for pain. I try to take nothing when I do not have a headache, so that it will work better when I do get a migrane. I have not tried internasal lidocaine, but I would like to. I have to take THORAZINE when the headache is very bad, but when I take it, I lose three days due to the hangover it gives me. Has anyone tried the lidocaine?

---Jayne Holland <jholland@bahamas.net.bs>
Nassau, NP Bahamas -

I am 45 years old, and have had migranes for about 30 years. My father who is now 81 suffers from them. I have been to the Diamond Headache Clinic in Chicago, Ill, and had every treatment I can try from Garlic to Imitrex. Here in Nassau Imitrex is called IMIGRAM and has been avaliable for about ten years. It really changed my life, so I could have one. Sometimes it still does not work. Imigram is very hard on my stomach. I have had an ulcer twice due to, I think, taking so many pills for pain. I try to take nothing when I do not have a headache, so that it will work better when I do get a migrane. I have not tried internasal lidocaine, but I would like to. I have to take THORAZINE when the headache is very bad, but when I take it, I lose three days due to the hangover it gives me.


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