Hello all. I too suffer migraines. They are becoming a lot moe common. I have noticed that when the barometric pressure changes, I get an instant migraine. I am allergic to a lot of medicines, so I am limited on what I can take. My migraine starts behind my right eye. Usually I have to get a shot of Demerol and phenegran for it to subside. That doesn't always work. The Doctor did put me on Stadol nasal spray. You have to be carefull tho. It can be addicting. I tried Imitrex and had a severe allergic reaction. I have tried so many medicines, it is a wonder any one works. I have suffered Migraines for 32 years. It does run in my family. They say that Migraines are hereditary. I believe it. Any help or comments I would appreciate. I am glad I found this site. Thanks again.
Pam <Nanafwb@aol.com>
Fl USA - Date: 10/07/98 (Wed)
Time: 04:26:53 PM
My headaches were first dianosed with a sinius infection, after the meds didn t seem to be helping I was then told it sounded more like a Migrain headache. Starting either over the left-eye and going back to the left side of my neck and down into my shoulders or starting behind my right eye then progressing to my left eye and then back to my neck and down. Every night I go to bed thinking maybe tomorrow I will wake with-out a headache: Oh yeah right... oh sure nope same ol same ol. This has been going on for 8 weeks now, some hours are worse than others. I can sit or lay and I am fine or in control anyway but I get up and walk and I get light headed and bright lights and loud nosises just kill me. The frequincy and and becoming more intense even after watching my diet and taking DHE introvienously twice. I was beginning to think this was all something that I was just dreaming up. Now seeing that I have a lot of Friends that suffer just as I do.
From the beginning I have 8 prescriptions not to mention the antibiotic that was given to me for 5 days introvienously and the DHE that was given me twice introvienously.
First it was Zoloft and Trazodone for depression, my Family Dr. Prescribed Floxin no help so then it was Claritin-D and Cefadroxil for sinius infection. From there I went to Esgic-Plus and Atenolol tryed the DHE now I am on Amitriptyline for depression again. Gees make up your mind I say. 4 CatScans 2 for the sinuis infection and 2 to check on the ol Brain they tell me they are normal. I also had 4 x-rays taken of my sinius cavitys.When I started I didn t think I had much to tell. Still have the cluster Migrains they call them and it will not be untill the last of November before I can see a nerosurgeon and this all started August 17th. thanks for listening Frank rex1292@aol.com
Frank <rex1292@aol.com>
Wichita, ks USA - Date: 10/07/98 (Wed)
Time: 01:39:41 PM
I'll try this again, I have suffered from headaches all my life and have tried everything up to now. If someone has tried MAXALT I would appreciate hearing about it. I am thinking of going to Detroit for Dr. Boyd's teeth clenching appliances, has anyone done this? I know that when I hurt I CLENCH. I would appreciate any help out there.
Dale-daleneill@aol.com
Dale <daleneill@aol.com>
bend, or USA - Date: 10/07/98 (Wed)
Time: 11:22:38 AM
Hi, after reading all the stories, I too, feel lucky that my migraines are not as bad as otheres.
I live in Egypt and am having a difficult time finding a medicine to get rid of the headaches. I've tried Excedrin Migrain, and nothing. I was using a medicine here called Migranil but it has now been taken off the market. The other meds they have are not working. I'm in a bit of a panic because I like to always have med with me just in case.
I need lists of anything that might help so I can check with a pharmacy. Doctors here really don't understand the pain.
Also, I have a question, does anyone get a large know behind the ear, like in the artery when a headache is coming on? I seem to have a samll knot but it gets bigger when I get a headache and it's a dead giveaway. Mine migraines started after totaling my car 25 years ago. Broke the steering wheel with my head. Cute.
My doctor wants me to take corgard to keep my blodd pressure down to help keep the headaches away. But, my pressure is abnormally low anyways so don't think this is a great idea. I am going to search for Maxalt and see if it is available here. Third world countries are not great with up to date medicine. I, too, love this site, I'm not alone or crazy. Thank you all for your info.
Jayne
Jayne <eshta@intouch.com>
Cairo, Egypt - Date: 10/07/98 (Wed)
Time: 05:49:06 AM
I have compiled an extensive list of web sites reguarding "Chronic, intractable, & nonmalignant pain. My hope is that the info. you glean from the following docts. & articles will serve to empower you & your families when you are forced to endure the unbelievable treatment that many of we migraine sufferers encounter at our local docts.&/or ER departments. (Reguarding myself,God has given me a wonderful family dr. & specialists) but in reading your entries, I know that many of you are enduring hardships in your quest). To start: Dr. William Hurwitz, a champion for chronic pain patients, http://www.c2corp.com/hurwitz.html,an article entitled "Pain, Narcotics & Us",his chat site & feedback letters from other sufferers, www.c2corp/commentfeedback4fhtml, The Woodchuck's Corner. He will soon be joining the forum at www.pain.com where you can submitt questions to him & other pain specialists. In an earlier entry, I posted my neurosurgeon's site for Dr. Horst Blume,The Headache & Pain Clinic; www.elwood.pionet.net/~hblume.htm
that gives information on most all types of headaches including cervicogenic headaches. For up to date info. on migraine meds see Dr. Robbin's site www.headachedrugs .com Where he also addresses Addiction vs Dependane" "Are Pain Killers Really So Bad" & a new meds to help w/building tolerance to you current med, etc. Just click on "What's New" for each month for different topics. In Canada, Dr. Peter Rothbart of the Rothbart Clinic who along w/Dr. Blume are Pres.& V.P. respectively of the Nat'l & InterNat'l Cervicogenic Headache Society & membs. of the Inter'l Spinalinjection Soc. at www.spinalinjection.com/standard/stand1_1htm & (1_2htm)at http://pw1.netcom.com/~mslaw/hurwitz.html you can find "Brochures to Help Explain To Docts." For the pain patients that have expressed a concern here regarding narcotics & addiction, there are several sources that addresses this fear, most agree that is has been one of the most perpetuated MYTHS in our society & has resulted in migraine sufferers not recieving the help we need in order to carry on the day to day activites that we have a right to experience w/out the debilitating pain.I can get you the sites that have the studies done that prove those who take narcotics for their legitimate pain, have a different response to narcotics in their brain as due addicts. Also, you can find a "Patients Bill of Rights", at www.druglibrary.org/schaffer/asap/sb_402.htm & "Patients Find Relief, Not Addiction in Narcotics: www.thriveonline.com/health/Library/CAD/abstract17885.html Great pain site w/links www.iont.net/~morphesus. Thru this Journal several months ago from Kris Kenyon's entry, I found a Migraine Awareness Group, w/an article "Myth & Reality" at www.webfirst.com/magnum/myth.html "An Understanding of Migraine Disease & Tips for Migraine Management. It stated that migraines are the most misdiagnosed, mistreated & least understood diseases. Also, more die of migranious stroke last yr. than were murdered by handguns! I really hate to take up any more space but if you are interested in any more sites for example, disability & migraines, hormonal factors & treatments, legislation for those w/chronic pain, & great site to "Get Help Fast", "How to Find A Good Pain Dr., Questions to ask etc. You can contact me & I will make a completed list available. Again, Ronda, thanks for providing us w/this forum! My history entry several mos. back (if interested) is under "Previous Entries",keywords DC from OK
DC from OK <mcanfield@msn.com>
USA - Date: 10/07/98 (Wed)
Time: 03:08:18 AM
I've had migraines since around age 6; our family GP finally diagnosed them (at the time, he referred to them as "chronic recurrent migraine"). I won't bother you with the gory details, but I too have tried everything on the market (prescription and over-the-counter), tried diet modifications, stress management, you name it. I'm now on short-term disability from a career I truly loved but will probably have to abandon, thanks to these damnable, uncontrollable, unpredictable migraines. I do have some information to share that may be helpful: my doc's "migraine cocktail": take Wigraine, naproxen and metoclopramide simultaneously (you must combine all three). You might find relief with this combo, but do talk to your neurologist first. All are prescription meds, too. Also, if it's any consolation to know this, the majority of us migraineurs were born with damaged parasympathetic nervous systems, which somehow cause the migraines. It isn't your fault. I could go on and on, but if you'd like to correspond, drop a line!
Annie <fillion@voyager.net>
USA - Date: 10/06/98 (Tue)
Time: 10:53:37 PM
I've had migraines since around age 6; our family GP finally diagnosed them (at the time, he referred to them as "chronic recurrent migraine"). I won't bother you with the gory details, but I too have tried everything on the market (prescription and over-the-counter), tried diet modifications, stress management, you name it. I'm now on short-term disabiity from a career I truly loved but will probably have to abandon, thanks to these damnable, uncontrollable, unpredictable migraines. I do have some information to share that may be helpful: my doc's "migraine cocktail": take Wigraine, naproxen and metoclopramide simultaneously (you must combine all three). You might find relief with this combo, but do talk to your neurologist first. All are prescription meds, too. Also, if it's any consolation to know this, the majority of us migraineurs were born with damaged parasympathetic nervous systems, which somehow cause the migraines. It isn't your fault. I could go on and on, but if you'd like to correspond, drop a line!
Annie <fillion@voyager.net>
USA - Date: 10/06/98 (Tue)
Time: 10:52:01 PM
