Journal of Migraine Sufferers



Hi everyone. I have been a migraine sufferer for 10 years now. I recently got on the Internet and decided to search for "migraine". I am so glad that I found this site. Just like all of you, these migraines have affected my life. I have been fired from a job, missed friends weddings, and just a lot of days out of my life. A lot of the medications that you all seem to be talking about I have never even heard of. I am from Canada so they might not be up here yet. I find that taking an over the counter pill called Mersyndol that has codeine in it, with two gravol seems to help, but I have to be at home because it knocks me out. I tried Migranol but it just made my whole body numb, except for the pain in my head and it made me more sick than I have ever been before. I am also glad to hear that other people fear getting addicted to the drugs. I thought I was the only one. I have recently started massage therapy treatments along with reflexology. It seems to reduce the severity of the migraines and they don't last as long (I still take the codeine though). I am getting married in June 1999 and since I know that I get them when I am stressed and/or excited I am a little bit worried about my wedding day. My parents are very concerned about this and are trying to do everything they can so I won't be stressed out that day. My boyfriend and friends are also very understanding, but none of them suffer from migraines so they don't really understand. When I found this site and realized that other people get the same symptoms (nausea, numbness, severe pain, etc.) I was so relieved that it brough tears to my eyes. I get about 2-3 a month and thought that was bad. I really feel for those of you that get them more frequently and my heart goes out to you. Thanks for sharing, it really makes me feel better. Deborah
Deborah <weeden@pathcom.com>
Ajax,, Ontario Canada - Date: 09/26/98 (Sat) Time: 01:31:24 AM
Hi Guys---I'm back again and I need your help. Everyone has been so helpful as I continue my quest to find the best migraine drug out there for severe migraines----I came across one called Maxalt ---I'm thinking that it may be relatively new. Is anyone familiar with it? Is anyone taking it now and if so how does it work for you? Also what price range is it in? As always--Thanks for your help Carol from New York
Carol <dennie20@webtv.net>
North Syracuse, NY USA - Date: 09/26/98 (Sat) Time: 01:03:28 AM
Hello fellow migraineurs: Just thought that I would drop in and write a few lines about how everything is going here in the "Land Of OZ." I have had three migraines in the past 3 weeks. Really good for me because I usually have them 2-3 times a week. I feel as though I am getting one this evening though, perhaps due to the change in the temprature today. We have been having realy pleasant weather the past few days, but today the temprature and the humidity went up considerably and so I began to have pain late this afternoon. I have no meds to take except OTC, so I guess that I will just suffer again. I can't call the doc for a trip to the ER. He is beginning to think that I don't have migraines. Wish it were his head, he would be sure of what the problem was if it were him. I have looked for another doc that my insurance will accept, but there is none. Another thing is, my husband may be changing his job soon and we will have to go a few months without insurance. I do not look forward to that. We had to declare bankrupsey a while back because we had no insurance and I had many, many frequent headaches and the dumb doc that I was going to then did not seem to understand that when I said I had no insurance, it meant that I could not go to all the expensive people that he was sending me to. I went anyway, and got into horrible medical debt. I got to where I did not answer the phone and I hated going to the mailbox. Thankfully all that is behind us now, but as I said, I do not look forward to going without insurance for 3 months or so. I know that there is a way to keep insurance while the change is being made, but it is cost restrictive for us. So I will have to deal with the problem when it comes up. The other thing will be about pre-existing conditions. I do not know how that will be adressed. Will just have to keep the good faith. All this thinking about what may come is makig the pain worse and so I think that I will go "soak" my head for a while in cold water. That sometimes helps. I hope for all of you a pain free day. Linda
Linda <llong@terraworld.net>
Coffeyville, KS USA - Date: 09/25/98 (Fri) Time: 08:00:00 PM
I have been told that I am experiencing Visual Migranes. I have no headache just trouble with my vision for once or twice a month for a periodto 15 minutes per occurance. Anyone who can share similar symptoms?
Linda <roy677@concentric.net>
Saratoga, NY USA - Date: 09/25/98 (Fri) Time: 07:54:50 PM
Thank Goodness for this website !!!!!!! Right now i cannot and will not thank god as I just got the worst news of my life. I am 33 yr old father of two. My 8 yr old daughters teacher called me today to inform me that my daughter was having stroke like symptoms with garbled speech. I knew right away what it was. Hereditary Migrane. I have suffered with migranes since i was around the same age. I have always begged god to spare my children from suffering these symptoms. 1) nausea 2) mental confusion 3) garbled speech 4) headache behind the eyes 5) sensitivity to light and noise 6) loss of motor skills due to numbness and heavy feeling of limbs 7) aura ( shooting stars in front of the eyes) I am angry, saddned, feel guilty due to the fact that she suffers from our genetic imperfection, am filled with empathy for her, have compassion for her, and am totally frusterated with this developement. I am lucky in the fact that i only get the migranes about twice a year, but have had no luck with finding a cure or even a suppressant of the condition. The only relief i have found has been sleep in total darkness and a cool rag over my forehead and eyes. My daughter has had some relief today from the medicine " imetrex" in inhalent form and 50 mg strength. This helped with the all symptoms except the nausea and the actual headache. I only hope that this will be an isolated incident and NOT a frequent suffering. I fear the torment that she may go through from other kids her age and especially when she does reach junior high school. Kids can be and usually are cold and cruel. I know this from my own expirience with the inability to speak what i meant to say due to migrane headaches. If anyone else out there has a young child that would like to exchange email with my daughter to help compensate with the ridicule i know she will soon face from her peers please email us at ketchikan2@aol.com or to her directly at areshia@aol.com thanks in advance. Bryan 1 frusterated and saddned father.
Bryan <Ketchikan2@aol.com>
Wenatchee , Wa USA - Date: 09/25/98 (Fri) Time: 07:28:09 PM
Dianna, I wanted to talk to you about your last posting, but my e-mail to you wouldn't go through. Please reach me at elli55555@aol.com. Thanks, Mar
Mar
USA - Date: 09/25/98 (Fri) Time: 06:11:09 PM
APPRX. 7YRS AGO I SUFFERED FROM CLUSTER HEADACHES. AFTER A CAT SCAN, I WAS REFFERED TO A NEUROLOGIST FOR INTERPRETATION AND TREATMENT. I CANNOT RECALL THE EXACT DOSAGES-I DO REMEMBER THAT THE DRUGS WERE TAKEN FOR NO MORE THAN A MTH., THE DRUGS WERE LITHONATE AND[I BELIEVE] A STEROID. THE RELIEF WAS TO LAST ABOUT 5YRS., AND THEN THE PROCEDURE REPEATED. I HAVEN'T EXPERIENCED EVEN A MINOR HEADACHE SINCE!!!! MRBT@AOL.COM
BILL THOMPSON <MRBT911@AOL.COM>
PHILA, PA USA - Date: 09/25/98 (Fri) Time: 05:19:20 PM

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