---Kristi <Augrocks@aol.com>
Val-p, fl USA -
If you haven't checked it out yet, take a look at www.headachedrugs.com It's a website for Dr. Lawrence Robbins and should be of interest to most of you.
---Meredith Cole <mecole@dttus.com>
New York, NY USA -
I have felt very alone in this, until I found this page. I am sorry that so many people suffer this malidy, however, I am glad that I am not totally alone. I have had these migraines since the age of 8 or so. I began menstruating at the age of 10 and the headaches became more frequent then. I had a complete hysterectomy at the age of 22 and began hormone replacement therapy then. The headaches have gotten gradually more and more frequent and much more severe in the pain effect. I am nearly 37 now. There have been times when I have considered suicide because I could not stand the pain any longer. But, I obviously haven't done it. I cannot do that to my precious children and precious husband. It is hard enough to deal with my headaches without subjecting them to the horror of suicide.
I am a retired midwife. I gave up my practice because of the migraines. Sleep deprivation seems to exascerbate the migraines. Many other things trigger my headaches as well.
My husband and 2 of my children understand and are very sympathetic. Our oldest daughter with much prompting and feigned sympathy for her plight of having to deal with a mother who was not always available due to a migraine, decided that I was a drug addict. They surmised this because I used Stadol NS, as prescribed for me by my cardiologist and neuologist. Due to my high blood pressure and an A.V. malformation in my head, I was instructed to NEVER allow a headache to become "full blown". I have complicated migraines that cause me to look and feel like I have had a stroke. I am on 400mg. of lopressor daily to control the b/p. So, I have no contact with my siblings or parents, because they believe that I am a drug addict, neglectful parent and that my husband is an inabler. My oldest daughter resented having responsibilities that fell on her lap, until I could get up and stop vomiting long enough for their daddy to get home and take over. My doctor has recently moved. To Alaska...argh. My husband is very helpful and sympathetic. We are all frustrated. Our 15 year old, middle daughter also has these damned migraines too.
Imitrex pills work very well for her, especially when they are used with a phenergan suppository. She calls suppositories, "Butt-Bullets" ha. I have read so many of the stories that are so much like mine. I cannot use Imitrex because it causes severe cardiac problems for me. My doctor will give me a prescription for Demerol but so much of the time, I am too pukey to keep them down even with the phenergan. She will not prescribe anything injectable . If anyone knows of a doctor who will prescribe injectables would you please write me with the name so that I can get in touch with him/her. I cannot afford to go to the ER when I have a migraine. Not only does a migraine automatically cause the ER staff to assume that the migraine sufferer is just a pathetic drug seeker, so the wait is at least 3 hours ( I was there 5 hours once with out treatment with my blood pressure at stroke level, and no one ahead of me... the ER was empty except for one elderlly man who was constipated and me with a migraine)
but the ER doctors always seem to want to try a new procedure. Or they will not listen to you when you tell them what works and what doesn't. I have a horrible reaction to Compazine. They gave it to me IV push, and caused me to have a hideous panic attack and caused my already high blood pressure to soar up to 220/140. That all caused my headache to get worse. Another time, they gave me DHE45 . I had a severe panic attack with that as well. Each time, my B/P got higher than the already high point it was at when I first got there. All they accomplished was to make my headache worse. Each time, they finally just gave me a Demerol and Phenergan shot and sent me home to sleep the damn thing off. I did not have any notes posted in the ER (yet) that I couldn't have narcotics... I just came to the conclusion that these ER doctors were trained at Auswitz , by Josef Mengele. The man who was my doctor at the time, desided that because I did not have health insurance anymore, that I was a drug addict. Literally, two months after we were no longer carrying medical insurance, (our bills were always paid so that wasn't a valid problem), he told me that he thought that I had a drug problem because I was having 1 or 2 head aches a month...I wish that he would develop migraines. I am so tired of having it assumed that I have psychological problems because I have these horrible headaches. I am sorry if this is a whiney letter. If there is anyone out there that seems to have some of the same things going on in your life, would you please write to me. My precious husband is sympathetic, but still has no clue how bad it is to have to endure this type of headache for more than a day. These headaches sometimes last 4 or 5 days. And many times I do not have any medicine to take to make it go away. Does anyone out there have any knowledge concerning the use of medicinal marijuana, in pill form or in tincture form, to stop the pain or the length of the migraine?
If so, please write to me and let me know what you know.
I am not usually this morose, but I have been having the usual aura that I have 12 hours prior to a really , really bad migraine. A letter from one of you guys would be great. Thanks for understanding.
Sincerely, L.A. Gibson
---Lou Alice Gibson <Babyktchr@aol.com>
I have felt very alone in this, until I found this page. I am sorry that so many people suffer this malidy, however, I am glad that I am not totally alone. I have had these migraines since the age of 8 or so. I began menstruating at the age of 10 and the headaches became more frequent then. I had a complete hysterectomy at the age of 22 and began hormone replacement therapy then. The headaches have gotten gradually more and more frequent and much more severe in the pain effect. I am nearly 37 now. There have been times when I have considered suicide because I could not stand the pain any longer. But, I obviously haven't done it. I cannot do that to my precious children and precious husband. It is hard enough to deal with my headaches without subjecting them to the horror of suicide.
I am a retired midwife. I gave up my practice because of the migraines. Sleep deprivation seems to exascerbate the migraines. Many other things trigger my headaches as well.
My husband and 2 of my children understand and are very sympathetic. Our oldest daughter with much prompting and feigned sympathy for her plight of having to deal with a mother who was not always available due to a migraine, decided that I was a drug addict. They surmised this because I used Stadol NS, as prescribed for me by my cardiologist and neuologist. Due to my high blood pressure and an A.V. malformation in my head, I was instructed to NEVER allow a headache to become "full blown". I have complicated migraines that cause me to look and feel like I have had a stroke. I am on 400mg. of lopressor daily to control the b/p. So, I have no contact with my siblings or parents, because they believe that I am a drug addict, neglectful parent and that my husband is an inabler. My oldest daughter resented having responsibilities that fell on her lap, until I could get up and stop vomiting long enough for their daddy to get home and take over. My doctor has recently moved. To Alaska...argh. My husband is very helpful and sympathetic. We are all frustrated. Our 15 year old, middle daughter also has these damned migraines too.
Imitrex pills work very well for her, especially when they are used with a phenergan suppository. She calls suppositories, "Butt-Bullets" ha. I have read so many of the stories that are so much like mine. I cannot use Imitrex because it causes severe cardiac problems for me. My doctor will give me a prescription for Demerol but so much of the time, I am too pukey to keep them down even with the phenergan. She will not prescribe anything injectable . If anyone knows of a doctor who will prescribe injectables would you please write me with the name so that I can get in touch with him/her. I cannot afford to go to the ER when I have a migraine. Not only does a migraine automatically cause the ER staff to assume that the migraine sufferer is just a pathetic drug seeker, so the wait is at least 3 hours ( I was there 5 hours once with out treatment with my blood pressure at stroke level, and no one ahead of me... the ER was empty except for one elderlly man who was constipated and me with a migraine)
but the ER doctors always seem to want to try a new procedure. Or they will not listen to you when you tell them what works and what doesn't. I have a horrible reaction to Compazine. They gave it to me IV push, and caused me to have a hideous panic attack and caused my already high blood pressure to soar up to 220/140. That all caused my headache to get worse. Another time, they gave me DHE45 . I had a severe panic attack with that as well. Each time, my B/P got higher than the already high point it was at when I first got there. All they accomplished was to make my headache worse. Each time, they finally just gave me a Demerol and Phenergan shot and sent me home to sleep the damn thing off. I did not have any notes posted in the ER (yet) that I couldn't have narcotics... I just came to the conclusion that these ER doctors were trained at Auswitz , by Josef Mengele. The man who was my doctor at the time, desided that because I did not have health insurance anymore, that I was a drug addict. Literally, two months after we were no longer carrying medical insurance, (our bills were always paid so that wasn't a valid problem), he told me that he thought that I had a drug problem because I was having 1 or 2 head aches a month...I wish that he would develop migraines. I am so tired of having it assumed that I have psychological problems because I have these horrible headaches. I am sorry if this is a whiney letter. If there is anyone out there that seems to have some of the same things going on in your life, would you please write to me. My precious husband is sympathetic, but still has no clue how bad it is to have to endure this type of headache for more than a day. These headaches sometimes last 4 or 5 days. And many times I do not have any medicine to take to make it go away. Does anyone out there have any knowledge concerning the use of medicinal marijuana, in pill form or in tincture form, to stop the pain or the length of the migraine?
If so, please write to me and let me know what you know.
I am not usually this morose, but I have been having the usual aura that I have 12 hours prior to a really , really bad migraine. A letter from one of you guys would be great. Thanks for understanding.
Sincerely, L.A. Gibson
---Lou Alice Gibson <Babyktchr@aol.com>
I have felt very alone in this, until I found this page. I am sorry that so many people suffer this malidy, however, I am glad that I am not totally alone. I have had these migraines since the age of 8 or so. I began menstruating at the age of 10 and the headaches became more frequent then. I had a complete hysterectomy at the age of 22 and began hormone replacement therapy then. The headaches have gotten gradually more and more frequent and much more severe in the pain effect. I am nearly 37 now. There have been times when I have considered suicide because I could not stand the pain any longer. But, I obviously haven't done it. I cannot do that to my precious children and precious husband. It is hard enough to deal with my headaches without subjecting them to the horror of suicide.
I am a retired midwife. I gave up my practice because of the migraines. Sleep deprivation seems to exascerbate the migraines. Many other things trigger my headaches as well.
My husband and 2 of my children understand and are very sympathetic. Our oldest daughter with much prompting and feigned sympathy for her plight of having to deal with a mother who was not always available due to a migraine, decided that I was a drug addict. They surmised this because I used Stadol NS, as prescribed for me by my cardiologist and neuologist. Due to my high blood pressure and an A.V. malformation in my head, I was instructed to NEVER allow a headache to become "full blown". I have complicated migraines that cause me to look and feel like I have had a stroke. I am on 400mg. of lopressor daily to control the b/p. So, I have no contact with my siblings or parents, because they believe that I am a drug addict, neglectful parent and that my husband is an inabler. My oldest daughter resented having responsibilities that fell on her lap, until I could get up and stop vomiting long enough for their daddy to get home and take over. My doctor has recently moved. To Alaska...argh. My husband is very helpful and sympathetic. We are all frustrated. Our 15 year old, middle daughter also has these damned migraines too.
Imitrex pills work very well for her, especially when they are used with a phenergan suppository. She calls suppositories, "Butt-Bullets" ha. I have read so many of the stories that are so much like mine. I cannot use Imitrex because it causes severe cardiac problems for me. My doctor will give me a prescription for Demerol but so much of the time, I am too pukey to keep them down even with the phenergan. She will not prescribe anything injectable . If anyone knows of a doctor who will prescribe injectables would you please write me with the name so that I can get in touch with him/her. I cannot afford to go to the ER when I have a migraine. Not only does a migraine automatically cause the ER staff to assume that the migraine sufferer is just a pathetic drug seeker, so the wait is at least 3 hours ( I was there 5 hours once with out treatment with my blood pressure at stroke level, and no one ahead of me... the ER was empty except for one elderlly man who was constipated and me with a migraine)
but the ER doctors always seem to want to try a new procedure. Or they will not listen to you when you tell them what works and what doesn't. I have a horrible reaction to Compazine. They gave it to me IV push, and caused me to have a hideous panic attack and caused my already high blood pressure to soar up to 220/140. That all caused my headache to get worse. Another time, they gave me DHE45 . I had a severe panic attack with that as well. Each time, my B/P got higher than the already high point it was at when I first got there. All they accomplished was to make my headache worse. Each time, they finally just gave me a Demerol and Phenergan shot and sent me home to sleep the damn thing off. I did not have any notes posted in the ER (yet) that I couldn't have narcotics... I just came to the conclusion that these ER doctors were trained at Auswitz , by Josef Mengele. The man who was my doctor at the time, desided that because I did not have health insurance anymore, that I was a drug addict. Literally, two months after we were no longer carrying medical insurance, (our bills were always paid so that wasn't a valid problem), he told me that he thought that I had a drug problem because I was having 1 or 2 head aches a month...I wish that he would develop migraines. I am so tired of having it assumed that I have psychological problems because I have these horrible headaches. I am sorry if this is a whiney letter. If there is anyone out there that seems to have some of the same things going on in your life, would you please write to me. My precious husband is sympathetic, but still has no clue how bad it is to have to endure this type of headache for more than a day. These headaches sometimes last 4 or 5 days. And many times I do not have any medicine to take to make it go away. Does anyone out there have any knowledge concerning the use of medicinal marijuana, in pill form or in tincture form, to stop the pain or the length of the migraine?
If so, please write to me and let me know what you know.
I am not usually this morose, but I have been having the usual aura that I have 12 hours prior to a really , really bad migraine. A letter from one of you guys would be great. Thanks for understanding.
Sincerely, L.A. Gibson
---Lou Alice Gibson <Babyktchr@aol.com>
I have suffered from migraines since i was 5yrs old.I'm 27 yrs. old now and I still have them now they are 4x's as powerful as before.and the only i ever get for them is midrin and inderal.It's like taking sugar pills.I don't believe there is an answer for them only something to keep them right there if not pounding your brain to much atleast making it feel likes it's going to explode.If i need to do things around the house well i usually don't until it's dark out because the light is so intense and the pain so great with it on i'm forced to do all my house work at night when it sets in on me. ---susan
Pregnancy and Miagrane: I have just recently found the "Migraine Journal" and find it to be very helpful. I like most of you have suffered from Migraines for over 25 years. I have been to and tried everything over the years. To this date no one knows for sure the cause; possibly from a head injury or hereditary. My father and sister suffer from Petit Mal Epilepsy. I have never been headache free since they started though I do go through periods annually where I may have some temporary relief. I have also experienced periods when I was working non-stop 50-60 hours a week that I would not experience them until I slowed down and then they would nearly kill me, so needless to say I have continued to work as much as I can. During the last ten years I have been on a combinuation of Corgard, Elavil, Periactine and Prozac at one time. Unfortunately for me I experienced all the side effects, weight gain, mood swings, loss of sexual desire. I currently have gone off the medication as I am trying to become pregnant. After 7 months and no luck at conveiving, and experiencing miagraines daily, I am at a point where I can barely get out of bed. I have now had a migraine everyday for the last six weeks with no relief and am feeling terribly depressed. I am able to get a little relief from imitrex and midrin when I am sure I am not pregnant and waiting for the next ovulation period. My doctor has allowed me to take inderal whle I am trying to get pregnant but have found absolutly no relief. Does anyone out there have any suggestions or any info. on treatment for miagranes during pregnancy. Also, there was a new brief on a local Seattle network today saying that they have found vitamin B-2 (Riboflavin) to help with migraines per a study in Europe with patients taking 400 milligrams a day, has anyone else heard anything about this? Would like to hear from anyone who would like someone to talk to.
---Deb Marr <DRWM@aol.com>
Bay City, TX USA -
Bay City, TX USA -
Bay City, TX USA -
hazel, ky USA -
Snohomish, WA USA -
