Journal of Migraine Sufferers

Hi, my name is Lynne and I have been suffering from migranes for probably 35 of my 40 years. I would get headaches up 2-3 times per week. After many doctor consultations, from Michigan to San Diego to Washington State, my headaches now come once a month. My weekly headaches dissappeared after in San Diego after a Pain Treatment Clinic gave me a cortisone shot in my neck. I do suffer from major sinus headaches that at time can trigger a migrane. Now my migranes can come before, during or after my menses. I have become so discouraged with doctors, that basically the headaches have won out over going to doctors. I know what causes my headaches but these doctors seem to feel that they need to start from the very beginning. I have tried every drug on the market from heart medication to anti-depressants to the new miracle drug, imitrex, along with bio-feedback, to excercising, to electric shock, to accupressure and accupuncture. As they say, been there, done that. The imitrex is a wonder drug, but not for me, I end up getting re-bounds. So I suffer, get blurred vision, throw-up, get ringing in my ears to the point where the only thing left for me to do is go to bed with an ice-pack for about 4 hours. I dont know if the ice pack helps, but I do keep 5 of them in my freezer at all times. Well, thats my story. Can anyone out there give me some new suggestions?

---ltstern@tscnet.com


Dear Ronda,

I sent my Case History to you some time ago, but have recently begun a new, non-drug treatment that seems to be helping. My new dentist was made aware of my migraines through his questionnaire which requested information on medication being taken. As a migraine sufferer himself, he may be somewhat more alert to possible treatments. At any rate, after examining my teeth, he described a treatment being used in Europe for migraine sufferers who have unusually tight bites (apparently I do). A mouth guard is built to be worn by the patient when sleeping. Willing to try anything, I shelled out the money and had him make me one. So far I've been wearing it for two weeks (definite results are not expected for four to six weeks), but my regular morning headaches are a thing of the past, and the one migraine I have had, was much less intense than any I've had in literally years! If anyone has any information on these mouth guards, I'd appreciate their passing it along to me. And anyone else might try talking to their dentist about the possibility of using such a device to reduce the incidence and intensity of their own migraines.

I think most migraine sufferers who have ever had to resort to Emergency Rooms when out of medication or when medication fails to work, have had less than positive experiences--at least some of the time. Is there anyway that we (migraine sufferers) could lobby (just whom exactly, I don't know!) to obtain some type of recognized identification to carry so that ER staff (new doctors, etc.) would not respond with such skepticism to our "claims" to suffer from migraines? ID tags are available for all sorts of conditions, contact lenses, diabetes, and drug allergies to name but three. Does anyone have any ideas as to how to go about getting such ID recognized?

---mlowther@safat.kisr.edu.kw


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